“Never doubt that a small group of committed people can change the world. Indeed, it is the only thing that ever has.” Margaret Mead
The bleeding disorder community has long been recognized as a strong voice in advocating for the needs of those affected by hemophilia and related bleeding disorders. The OHF offers training and opportunities for members of bleeding disorders community to advocate for their needs including meeting with their elected officials to tell their story at our Day at the Hill in March.
Advocacy is a year-long process. Advocacy can include:
- Writing letters to your elected officials regarding proposed changes to law or regulations;
- Meeting with other state decision-makers, including state departments of insurance and Medicaid agencies;
- Educating health plans about the needs of the bleeding disorders community
- Educating schools and employers about the needs of the bleeding disorders community; and
- Advocating to your health care provider about your unique health care needs.
Every person affected in anyway by a bleeding disorder has a story to tell. Your story is what will impact and help bring about change needed to ensure your healthcare needs are met.
Join us as we work together to ensure access to care for all people with bleeding disorders.
Please visit the National Hemophilia Foundation’s Advocacy page for more tools and resources to help you advocate: https://www.hemophilia.org/Advocacy-Healthcare-Coverage/Advocacy-Tools-Resources